Sitting in a comfortable, plush green chair, Janice Hanson is a poised woman with an elegant, short haircut. Her calm, dignified demeanor belies the turbulent decades of raising two children with a rare genetic disorder. Little could she imagine that this journey, which began with the birth of her first child 57 years earlier, would culminate with the discovery of a rare genetic mutation responsible for the constellation of symptoms that restricted, but never stopped her children from seeking the most out of life. (more…)
Archive for August, 2017
An Almost Four-Decade Odyssey to Find the Cause of a Rare Muscle Disease
Posted in Medicine on 08/24/2017|
EarthSpin 